Evil E.D. held my son hostage

 

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Logan Neale

by Tamara Rollinson

The Woodlake Turkey Trot was in honor of Logan Neal. November 19, 2016, 9:00am-11:30am.

It’s name is Evil ED. ED stands for Eating Disorder.

I declared war on Evil ED shortly before my son Logan turned 16. The disease crept up on him subtly and gradually until it had a death hold on his brain.

Evil ED does not discriminate. It’s an equal opportunity life destroyer. The common myth is only young females have eating disorders. Not true.

Evil ED’s victims are girls, women, boys and men. They are all races. They are high school cheerleaders, football players, baseball players, wrestlers, runners, over achieving students, artists, writers and the list goes on. Some are ten-year-olds and even younger. Most I met were teenagers. Beautiful souls and so misunderstood.

The symptoms started innocently

Logan ran track, played football, loved his middle school and was growing up to be a strong young man transitioning to the ninth grade. Blonde hair, blue eyes and fair-skinned, Logan was in perfect shape because of his fierce dedication to physical fitness. He had a small frame without an ounce of fat.

Something strange started going on during the summer of Logan’s 15th year. He would say the Evil ED grip began applying its pressure at age 14.

Maybe Logan’s behavior change was a delayed response to the loss of his father who died by suicide when Logan was nine-years-old. Maybe he inherited mental illness from family who suffered from depression, anxiety, bi-polar and manic depression. Maybe it was a chemical imbalance that brought on debilitating anxiety and mental pain, which later manifested itself as borderline personality disorder.

Logan was fiercely dedicated to being a good athlete. At ages 15 and 16, Logan avoided smoking, getting high or taking drugs to ease his anxiety. He knew drugs would get in the way of his dream to be a great runner.

He resorted to food, but the thought of gaining an ounce horrified him. He was a little chubby as a boy, teased by his peers because of it, and vowed to himself he would never be that awkward kid again.

But the anxiety was unbearable. He would cut himself to bring relief and mindlessly eat, both of which are common signs with Evil ED’s victims.

The signs

It started with the peanut butter. An entire jar would be gone in a day. Then the ice-cream. All of it gone in one sitting. I found hidden candy and food wrappers in Logan’s closet and crumbs of chocolate cake in his bathroom, with the empty cake box stashed in the cabinet under the sink.

In denial, I thought this is a growing boy who is extremely active. Don’t all teen boys eat like crazy?

When Logan had dinner with the family, he limited his intake of food to a salad, then ravaged the refrigerator when I wasn’t looking.

After the third downed jar of peanut butter in record time, I confronted Logan about his eating and he got extremely defensive. Something was up, but I did not have a clue.

I took Logan to his pediatrician for guidance. Perhaps he needed to see a specialist or therapist, but she didn’t see a problem. She advised Logan to stick to the basics of the food pyramid and everything would be ok.

Evil ED, meanwhile, was snaking its way through Logan’s mind and body, fooling everyone, even his doctors.

The strange behaviors continued. Food quickly disappeared as soon as I brought it in the house. I had to hide the groceries in the car and wear the keys around my neck.

As Evil ED evolved, Logan was isolating more.

And the purging began. Logan engaged in a vicious cycle of consuming large quantities of food, any food, eating bowls of flour and water, consuming raw oatmeal, followed by purging. He purged several times a day.

Desperate search for help

I couldn’t find the right help at first. I read books on eating disorders and spent hours on the internet searching for answers. I called hotlines and helplines and set up appointments for Logan to see a psychiatrist, only to be put on a long waiting list before Logan could get a visit in.

One of the hotline counselors led me to a support group for people with eating disorders. Logan went, which did not help, like expecting a cancer patient to talk his health issues away.

I sent Logan to an eating disorder therapist who came highly recommended. She completely under estimated the severity of his illness. She had him write about his feelings.

Meanwhile, Logan was silently dying.

Finally, I connected with a wonderful neighbor whose daughter battled anorexia. She was the first person to set me on the right track.

By the grace of God, I was referred to the right therapist and after the second visit, he looked Logan in the eye and warned both of us if he didn’t get into treatment immediately, he could die from Evil ED.

Within a few weeks, going at warp speed, I took Logan out of the ninth grade and admitted him into the Eating Recovery Center in Denver, Colorado. He was there for two months in a tightly controlled environment where he was on a strict diet and could not purge.

During his stay, he was restricted to a wheel chair for one to two weeks because his heart rate got dangerously low, around 35 beats a minute when he was sleeping. The purging depleted his electrolytes causing a temporary heart condition called Bradycardia.

An eating disorder specialized medical team worked tirelessly with Logan to re-wire his thinking, squeezing Evil ED out of the picture, but it never completely disappeared. During his last three weeks in treatment, Logan’s step father Jack and I flew out to Denver for the intensive family therapy program. We took day-long classes everyday to learn how to take care of Logan once he got home.

Logan got better. Evil ED went into remission.

What I learned

  1. Don’t believe everything your doctor says. When in doubt get a second, third or fourth opinion. Find the right team. Go with your instinct
  2. Educate yourself. Read books and research online.
  3. Seek guidance from others who have been there. Join eating disorder support groups of parents who experienced battle with Evil ED. They will be your most valuable resource.
  4. Know the enemy well. Logan had bulimic nervosa, which robs the body of vital nutrients, including potassium and electrolytes causing serious health problems if it goes untreated.
  5. Run don’t walk to get help. The faster Logan could stop or curtail his eating disorder behavior, the better success he had.
  6. Seek a reputable and proven eating disorder treatment program. Logan had to be completely removed from his home environment, and put in eating disorder rehab, making it impossible for him to engage in his eating disorder behaviors for a minimum of two months. Ideally he needed eight months to a year in treatment. Insurance covered only so much at the time. And residential care was nearly $1,000 a day.
  7. Become the after care treatment plan. I was schooled in nutrition, meal planning and the mental game behind eating disorders. I set up a medical team at home involving a nutritionist, doctor, psychiatrist and therapist who specialized in eating disorders and they communicated with one another to get the best results for Logan.
  8. Monitor your child. Doctors urged me to continue being a helicopter parent, monitoring Logan’s activities online, at school, after school and at home.
  9. Limit the pantry. The food at home was limited to Logan’s meal plan and I gradually brought in other foods as Logan got stronger.
  10. Prepare for relapse. I had to be ready for setbacks ahead of time.

Logan stabilized. He had setbacks, but was able to move forward with the help from his family, medical team and his own determination.

He relapsed when he was 18, and returned to the Eating Recovery Center for three weeks. Logan went into the adult residential program, which was not as effective for him as the adolescent care was. His anxiety was more than what they could handle.

He was gradually gaining the knowledge and skills to deal with Evil ED on his own with the help of others. There were long stretches of time when Logan felt he had his eating disorder under control. And there were times when he struggled, but he was never as sick as he was at age 16.

Logan’s compassion

I speak of Logan in the past tense because he died in a truck crash less than one mile from home when he was 19. This happened just a few months ago.

While Logan has gone to the next dimension (his reference to Heaven), I feel him working through me.

Logan had a deep empathy for others who were chased by Evil ED.

I know he wants me to carry on his message and his story. (see a facebook post he posted in March 2016)

“I am who I am and I am beautiful. And so are you. You can be your own best friend or worst enemy. Be kind to yourself despite your flaws. ” Logan Neale

Notes from Anne Moss

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7 thoughts on “Evil E.D. held my son hostage”

  1. I am so sorry that Logan was killed. But he died knowing his mother loved him and pulled out all the stops to get him the help that he needed. Thank you for sharing this. I had a cousin who died from Anorexia. Blessings to you, may Logan have a blessed stay in heaven, looking over his Mama with love.

    1. Carol, thank you for your kind comments. I hope a parent who was lost like me will read this and realize they are not alone when it comes to something so insidious at eating disorders. There is hope.

  2. Logan is our second cousin and I speak for our family when I say we will always remember a bright, happy, and kind young man. His story is a testament to a mother’s love who refused to listen to the experts, an overcomer, and a insisgtful story of a strong woman who seeks to help others instead of dwell on the negative. We love you always and will forever hold happy memories of Logan.

  3. I am so sorry about Logan. What a brave young man he was to go public with his struggle. As with Charles, I know others will be helped by reading his story. Thank you for your courage and God bless!

    1. Sometimes I want to call it a day and join Logan. His good work is not finished. Like Charles, there is much to be learned from Logan. I have a feeling those two are up to something in the “other” dimension.

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